tag:blogger.com,1999:blog-1812829745872292085.post5199735248504623824..comments2023-08-23T05:17:47.225-07:00Comments on No Hands But Ours: the blog: A special need defined: Giant Congenital NevusStefaniehttp://www.blogger.com/profile/15929186829748543826noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1812829745872292085.post-70777789219744432502010-09-29T00:16:05.418-07:002010-09-29T00:16:05.418-07:00Hi :)
There is a blog I read of a mom who has a s...Hi :)<br />There is a blog I read of a mom who has a soon born with a giant Nevus.<br />The child is her own, not adopted, but she shares her story of when he was born, and the several surgeries he has had so far.<br />I think it would be great for new parents to read.<br />http://withhandsandheartsfull.blogspot.com/Gracenoreply@blogger.comtag:blogger.com,1999:blog-1812829745872292085.post-69424449178643324772010-01-20T20:48:13.255-08:002010-01-20T20:48:13.255-08:00I was so excited to read about Ava! My daughter ha...I was so excited to read about Ava! My daughter has a PWS birthmark. I'm not sure if you have joined this group or not, but please join us if you haven't already: http://groups.yahoo.com/group/adopted-children-with-birthmarks/Staceyhttps://www.blogger.com/profile/17515794651422735221noreply@blogger.comtag:blogger.com,1999:blog-1812829745872292085.post-50715598623415056782010-01-20T17:31:31.806-08:002010-01-20T17:31:31.806-08:00Wonderful post. And I know exactly what you're...Wonderful post. And I know exactly what you're saying. It was the same for us with Q's cleft. Even before any surgery, it only took us a few days of getting to know her and we literally didn't "see" the cleft. It's not that we saw "past" the condition, it's that we actually admired and adored her exactly as she was WITH the condition. So that by the time it was time for the first surgery, all I felt was grief at the loss of the original "her" that I had come to love so deeply. I loved her huge smile, and I was nervous that the surgery would change something essential in her. Of course it didn't, and at each stage I got used to her new "look". There was, though, a grieving process each time. In the end, what I learn is that she is who she is - and she shines through again each time just as brightly as she did the first. There is no way to conceal or diminish who she is, so I needn't have worried.Maiahttps://www.blogger.com/profile/17149615417507090988noreply@blogger.comtag:blogger.com,1999:blog-1812829745872292085.post-73667541821027180022010-01-19T17:28:29.507-08:002010-01-19T17:28:29.507-08:00I remember you from China! You were there in earl...I remember you from China! You were there in early-mid December, right? I was at the White Swan with you, I think! My blog is www.nihaonaia.wordpress.com, password: nowsix. Maybe you will recognize us, I had the 2 older daughters. Congratulations and welcome home. Your daughter is just beautiful!Soojung Johttps://www.blogger.com/profile/04357470237627789548noreply@blogger.comtag:blogger.com,1999:blog-1812829745872292085.post-73702917398729685832010-01-19T13:07:47.010-08:002010-01-19T13:07:47.010-08:00Ava is such a lovely child! I know many people mu...Ava is such a lovely child! I know many people must see her birth mark and that's all they see but a mother sees much more deeply than that. <br /><br />Thanks for such an interesting and informative post! <br /><br />Donna<br />Our Blog: <a href="http://2happy.typepad.com" rel="nofollow">Double Happiness!</a>Donnahttps://www.blogger.com/profile/15717351421043156637noreply@blogger.com